Today ended up being the perfect fall day. Ben and I slept in late and then instead of going to the Rally to Restore Sanity and/or Fear (I thought it might be a bit too much for me to handle -- sorry Ben), we made french toast and then went off to spend the day at Mount Vernon like good NOVA yuppies.
It finally felt like Autumn outside today and it was the perfect day to traipse around the ground of Mount Vernon (my favorite part was sitting in front of the house overlooking the Potomac for a few minutes while we waited for our house tour).
After exploring the grounds, we went to the gift shop where Ben purchased a Mount Vernon cookbook (he claims it has good soup recipes) and mini flags for his office, and I purchased a bar of lemon soap and a count cross-stich Christmas stocking pattern kit. And no, this does not make me old, it makes me crafty. It also means I am officially in the holiday spirit: Bring on November!
Once we were done with Mount Vernon, we headed over to Rustico (a favorite restaruant and extraordinary beer bar) near Old Town Alexandria. We sat at the bar for a couple hours and had some good food and beer. After dinner, we went next door to Buzz for coffee (first gingerbread latte of the season!) and then came home.
We are now watching the Washington Capitals hockey game and are enjoying watching them trounce the Calgary Flames. Go CAPS! I wish I could actually go to a game in person though.
The cross-stich purchase earlier put me in a crafty mood, so I picked up some old knitting and I finished a scarf tonight and started on a soft winter hat. Now if only I had the energy to clean... ;o)
I have to say that I am feeling great today (and yesterday)! Definitely not perfect but anything above 85% is perfect in my book these days. And I'm so glad that I now know that I won't feel like crap everyday and that it really does get better. It sucks knowing that I will have to go back for more treatments and that I will have to feel bad again -- but I just have to stick it out and I'll get back to feeling good again.
This next week will present some interesting challenges I think. It will be my first full week back at work and I think it might be the week when I finally lose my hair. The idea of losing my hair doesn't freak me out as much as it did originally, but its still a lot to wrap my head around and I'm feeling pretty nervous about the whole thing. I'm hoping it all just ends up being much easier to deal with than I think it will be, just like everything else has been so far.
Okay going to finish watching the CAPS win!
Much love to you all!
Friday, October 29, 2010
By this point I've figured out the ins and outs of all of my drugs and have finally gotten them down so that I can feel relatively normal and not feel like I want to jump out of my skin -- so that's a positive.
I continue to feel better and stronger everyday. I guess the hard part is knowing that I'm working toward a ticking clock and in a week and a half, I'm going to have to get injected again and start the process over. At least this time I know what to expect and can hopefully head off some of the symptoms before they start.
I have not done a very good job with keeping in touch with people over the last few days and I apologize. It really was all I could do not to jump out of my skin, and I had no patience for the internet. Now that I'm back to my "almost normal" self, I should be much more responsive.
A few weeks ago, Ben and I went to the FDR Memorial and the Jefferson memorial one evening. It was very beautiful at night and not at all crowded. I had recently found out that I would have to undergo chemo and I was thoroughly freaked out by the whole thing. While at the FDR Memorial, I saw this quote etched at the entrance behind a statue of FDR in his wheelchair and it really struck me:
"Franklin's illness gave him strength and courage he had not had before. He had to think out the fundamentals of living and learn the greatest of all lessons -- infinite patience and never-ending persistence." - Eleanor Roosevelt
And I can only hope that I too can gain this patience and persistence from my situation and I learn to take things slowly and appreciate more of the everyday joys.
As for this weekend, I'm not sure yet what we have planned. There is the March to Retore Sanity happening on Capitol Hill this weekend, but we'll have to see how I'm feeling. I know Ben is psyched for a new TV show called "The Walking Dead" on Sunday (its a zombie show). And I wouldn't mind trying to find a Halloween Party or event, now that I have the best costume (thanks to my office costume party). I'll post a picture. Let me know if you have an suggestions!
Love you all!
Friday, October 22, 2010
My thought is that if I'm going to lose my hair in two weeks, it will be much easier to lose half of it, rather than the really long hair I had. Now I have just above shoulder length hair to get me through the next few days. I had a wonderful experience at the salon and the hair dresser I had (I forgot to ask his name) was absolutely wonderful. I had a few friends from AH&A come down to join me (since the salon was just down the street), and of course my fabulous mother was there. After the hair cut was over, I walked up to AH&A to say high to some old friends and it turned out to be a fantastic afternoon. Thanks to you all.
I came home to find that Ben had gotten out of work early, so we spent a little time cleaning and organizing the apartment with my mom. The place still doesn't look fantastic, but its hard to keep things clean when you have other things on your mind. ;o)
During the cleaning, I had a bit of an emotional breakdown -- as my mom described it, all of the drugs and chemicals they have been pumping into my body have finally worked their wait to the surface. Overall I feel fine, I guess I just needed to let it out a little.
My wonderful, wonderful boyfriend Ben then went to the grocery store for me and made me a chili cheese baked potato which, oddly enough, was exactly what I needed. And while he was at the store, I got to finish watching "The Holiday", which is one of my favorite movies, and despite how much he loves me, I know I couldn't make him sit through watching that. :o) My dad came up to take my mom home so for awhile the gang was all here and we were able to have sort of dinner together.
Now I'm anxious about tomorrow. They say that days 3 and 4 could be the day when could start really feeling symptoms of chemo and up until now, I've feel largely fine. I just hope I don't get hit too hard -- I really would like to sail through this without much trouble -- is that too much to ask?
Thank you again for all of the thoughts and and good vibes. It makes me smile to see all of your well wishes and helps to keep me going through all of this.
Thursday, October 21, 2010
I'm getting chemo at my oncologists office, and its in a room that has 4 chairs in it so I get to make new friends while I am there. I did meet one woman today who also has breast cancer and she is on the younger side. She was also receiving her first treatment today so it was good to have someone to talk to who could relate.
Since I've been home, I've just been relaxing and letting my day nurse and evening nurse take care of me (read: my parents and Ben). I thought that the Caps might be able to pull out a win for me tonight, but apparently they didn't get the memo...
Now for a recap on the rest of this week:
Tuesday - I went to have a MUGA heart scan (its a pretty simple procedure: they inject you with radioactive dye, then you sit on a chair for about 20 minutes and a small plate takes pictures of your heart). This would have been fairly uneventful if it hadn't been for the company I had. While I was getting the scan behind a curtain (and supposed to be perfectly still) they brought in the next patient to start an IV on (while I had done 30 minutes or so earlier). And guess who it was? Waffles and yogurt woman from my chemo class -- I instantly knew when I heard her voice, though I never actually got to see her. I listened to her antics as she IV and had to try extra hard not to laugh while on the machine.
Wednesday - I started off the day at Alexandria hospital so that I could get my mediport placed in my chest. This is there so that I can get my chemo drugs and blood work through it instead of a standard IV. When I went into the operating room, they had a wonderful hot air pad and warming blanket that felt so wonderful when I woke up from my twilight sleep (slept through the whole thing and don't remember a thing). Coming out of the twilight sleep was so pleasant -- mostly because the bed was so cozy. Once I woke up and had a quick 15 minute recovery, I had to rush down to Stafford for a dentist appointment that I was already late for. Luckily they were still able to work me in and I was all set to go for my first chemo treatment today.
Last night the port surgery took it s toll and I had a hard time sleeping because my muscles were sore and the bandages were pulling my skin, but I'm hoping tonight goes better since I had some of the bandages taken off. Interestingly enough, last night was the first time I had trouble sleeping since being diagnosed -- probably because I've just been exhausted at the end of everyday.
Sorry this post is mostly the boring detail stuff but I'm out of funny and witty insights at the moment. I'm off to bed soon, but I'll check in again soon.
Thank you to everyone for all of the positive thoughts today!
Monday, October 18, 2010
And I think it might be a cosmic joke that I was diagnosed right before October, which as we all know is Breast Cancer Awareness month. The first week or two were difficult to handle. Every time I saw pink or someone promoting it I just felt bitter, but as I've progressed and accepted everything I've begun to appreciate the significance of having a very well-funded ailment. So for now, my feelings about the color pink are mixed -- I guess its still a love/hate relationship.
In general, this whole experience has been very unique. Its been everything from frustrating and upsetting to hilarious and touching. As you can imagine, dealing with doctors, labs and insurance companies is not very fun -- and when you try to cram everything into 3 weeks, it gets very challenging to say the least. But I do have to say that its been great to know that I have so many people standing behind me through this. The support that I've received from everyone that knows has been so touching and it helps to have so many people who are there to help me out and make me smile through all of this. So thank you to everyone who has sent positive thoughts my way and been so supportive.
There are a lot of overwhelming aspects of having breast cancer, but the first major hurdle I have to clear is chemo. I start treatment this week -- just 3 weeks after receiving my diagnosis and I barely feel prepared for it. I've gone out and purchased all of the recommended comfort and care items. I've started to put together a "bag o' fun" to take with me on treatment days. I've started wig/scarf shopping (yes, I will have the pleasure of going "G.I. Jane"). I've attended "Chemo 101" through my doctor's office where I met an interesting cast of characters who are also about to begin treatment (and I can tell you that watching someone eat Eggo waffles doused in yogurt at 9am in the morning is, while highly disgusting, actually a great distraction from feeling upset about the chemo side effects -- it really helps you channel your bad feelings toward the idiot eating it). But even after all of this, I still don't really feel prepared.
I keep thinking when I'm done with all of this, I will be a stronger person. And I hope that I can use this experience and turn it into something positive one day. Until then, I will just try to stay positive and get through one day at a time. So let the countdown begin -- I should hopefully be done with chemo sometime in early March. Then its time for a little surgery, maybe some radiation...piece of cake!
In an attempt to keep everyone updated and hopefully to give me something therapeutic to do, I've started this blog. We'll see how successful I am at keeping it up to date -- I will do my best. And please, keep those distractions coming.
Love you all!